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The Learning Disabilities Mortality Review (LeDeR) Programme

Annual Report December 2017

The Learning Disabilities Mortality Review (LeDeR) Programme is commissioned by the Healthcare Quality Improvement Partnership (HQIP), on behalf of NHS England.

The persistence of health inequalities between different population groups has been well documented, including the inequalities faced by people with learning disabilities. Today, people with learning disabilities die, on average, 15-20 years sooner than people in the general population, with some of those deaths identified as being potentially amenable to good quality healthcare.

From 1st July 2016 to 30th November 2017, 1,311 deaths were notified to the LeDeR programme. The most frequent role of those notifying a death was Learning Disability Nurse (25%), most commonly working in a Community Learning Disabilities Team.

Key information about the people with learning disabilities whose deaths were notified to the LeDeR programme includes:

  1. Just over half (57%) of the deaths were of males
  2. Most people (96%) were single
  3. Most people (93%) were of White ethnic background
  4. Just over a quarter (27%) had mild learning disabilities; 33% had moderate learning disabilities; 29% severe learning disabilities; and 11% profound or multiple learning disabilities.
  5. Approximately one in ten (9%) usually lived alone
  6. Approximately one in ten (9%) had been in an out-of-area placement.


Please click on  the link for the full report: LeDeR-annual-report-2016-2017-Final-6
Here is a short power point presentation provided by the specials: Specials Presentation